2012! Still alive!

I’ve been so busy lately. Work, family, the holidays & kids being on their break have been keeping me occupied.

I’m finally reaching a point, into the second week of this new year, where I am starting to see lots of progress, plenty of clarity, and feeling the drive to really turn the corner (from the past 3 years of sleep deprivation, stress, depression, money fears) and to take back the reigns on this horse-drawn carriage.

The big accomplishment today was launching our new collaboration: Living Life Upside Downer. This blog is a family project and will help us not only work through issues, but share things with people in a way that is honest, humble, and whimsical.

That aside, I’ve been a busy boy in the kitchen!

From Christmas Dinner Cioppinno to making homemade ketchup… I’m certainly on a roll! My next few posts this week will be covering food items (with one or two observations from the bar tossed in for good measure) so stay tuned!

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Fall turns into winter

It’s been too long. So much has happened in the past month that I figured I would catch up a bit and fill in some gaps.

The biggest news is that Sam has been making huge progress; joining two words, making a few small fragmented sentences, adding to his vocabulary. One example: You can hear Sam point at things and say “Hah Dat” which is ‘Have That’ this in reference to what he has at home, or in some cases wants to have at home. All of this is hugely rewarding and exciting.

We have been doing everything we can to get out and be active. At the end of September we took a trip to the Oregon Coast during a storm.

It is windy and hard to hear Zoe’s break down following Sam’s destruction of her creations but it certainly provides a glimpse into what Zoe deals with on a constant basis.

Chris Haberman with Sam at his art opening on 10/13/11

October found us on one of our most treasured evenings out & about as a family. We made the trek to an art gallery. Our friend and favorite artist Chris Haberman had an art opening at Portland State University in downtown Portland.

We brought our particular brand of chaos to this small gallery and the kids LOVED seeing Chris and the art. From there we walked to a place called Cafe

Zoe observes Chris Haberman's art work

Yumm for dinner, made our way to a fancy store that sells spirits (for the grown ups), and to Voodoo Doughnuts on the NE side of town for a sweet treat, photobooth shenanigans & some pinball. Everyone had big smiles!

Zoe captured this photo of me in the pumpkin patch

As October was ending we enjoyed venturing out to get pumpkins at Kruger’s Farm on Sauvie Island.

This spot has become a favorite destination of ours. We have yet to attend their summer concerts for a plethora of reasons.

Now that Sam’s communication skills are emerging, I foresee a future where we can head out to this farm on warm summer nights to listen to the music.

Zoe with baby pumpkins - October 2011

As November roared past us, we rode the waves as eloquently as possible. Thanksgiving was spent with our dear friends Carolyn & Phil and their sweet little ‘almost 1 year old’ boy, Silas. I decided that I would smoke the turkey in my smoking cabinet. I am happy to report that the turkey was delicious!

December has decided to blast by us faster than we could have ever imagined.

Christmas is just a week away. We celebrate Winter Solstice and our family & friends more than anything else (as our home isn’t one that gravitates to any one religion). We have adopted the traditions of having a tree,  decorating, putting lights up, and gift giving.

We went on a quest to cut down our own Christmas tree this year. We started at a cool farm that was suggested by a friend (Frog Pond Llamas & Alpacas) and while we struck out in finding the right tree, we certainly were entertained by the animals!

A few days later, we went to Sauvie Island Farm and found ‘the tree’. In order to get this glorious tree into our home some projects had to be completed.

Photo by Jen www.shesawthings.com

Sam, Zoe & I are up to no good at the tree farm

The family room needed to be painted (got that done), the TV mounted on the wall (got that done too), and shelves hung on the wall (done as well). So we have a really nice place to hang out as a family and the ball has begun ‘rolling’ in the right direction on crossing off things on the never ending ‘to do list’.

I’m closing this blog post with a sneak peek at what’s to come in the next few weeks…

We have lots of news regarding Sam’s development, our hopes of fundraising so that we can continue with our new found help at the Artz center, projects that both Jen and I are embarking on, more frequent posts regarding my food creations & some interesting observations I make while at work.

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Speech Therapy, Autism, and Why You Should Care?

Why should you care about Autism?

Well… Apparently Autism is becoming so widespread that it was enough to become the focus of a two-part episode on a recent Extreme Makeover Home Edition. If you watch that show you know what I am talking about.

I watched the show yesterday and felt a host of emotions. I had so much compassion for the family that the show was helping. We have one child with Autism and the thought of having to manage 2 children with and one without seemed so overwhelming to me.

It was refreshing to hear about the Sparrow Club and how they utilize community to not only help someone in need but to teach kids (and the community) more about the challenges faced by the people & families they adopt.

I have to live in this delicate balance (as I am sure Jen does too) where I am all at once striving to fight every single day to help get the support and services my child needs to become what and who he wants to be. I also have to continually brace myself for the acceptance that there is a real potential that Sam will never be able to live alone, that he may never know independence, he may never know what falling in love is like, going on a date, or a first kiss.

When Lindsay McPhail opened her heart on national television and explained that she and her husband just have to let go, and accept that this is what faces them for the rest of their lives it brought tears to my eyes.

I don’t think that she said that because it was tragic, like you might when you’re facing a really awful terminal disease that will likely lead to death, but I felt that she said it because it’s the truth. Her words and tears came from someone who is living with tremendous challenges and whose undying love & commitment to her children and family is tested every single day. It is like going to battle each and every day for the rest of your life.

Everyone has different dreams and aspirations for themselves, and those of us with children have dreams and aspirations for them. When you are confronted with this kind of challenge, it requires you to come up with an ever-changing series of plans for the rest of your life.

Why do I think you should care about Autism? Because not only is it here but it is spreading like wildfire.

As of 2011, Autism affects one in every one hundred and ten children and more specifically, one in every seventy boys.

It is important for folks who know nothing about Autism to learn about it. It is important that these folks have some compassion when a kid is having a meltdown in a grocery store, or a restaurant, or anywhere in public.

Try hard not to look at someone in disgust. Try smiling or looking away. Until you’ve lived in their shoes for a day, lets just say it’s best to leave your judgements aside.

You can find out more about Autism at Autism Speaks.

Onto our world now…

We found out yesterday that the funds are gone in our county’s disability services. This means that the speech therapy (which is NOT covered by the expensive medical insurance that we have been paying out-of-pocket for over the past few years) that we have been trying to get assistance with is going to end for Sam.

Jen has jumped through all kinds of hoops to get the funding and getting the call that it was in vane in the middle of all this hard work is like getting a boot to the gut.

A while ago I reached out to friends with a fundraiser. With the help and amazing generosity of my friends and anonymous folks from all over, we raised almost $2,200 to help us pay for this much needed therapy.

I am trying to come up with a new series of fundraisers in the next month or so because I simply cannot sit by and not help my son get therapy. It seems to me that it is essential that any person who expects to participate in society be able to communicate. Communication is so often taken for granted that it isn’t until folks lose their ability, or have it temporarily interrupted, that they understand how important it is.

Why a health insurance company would not be interested in helping to pay for this kind of critical therapy is beyond me. I guess I shouldn’t be surprised, as I have loathed medical insurance companies for some time now. They have profited from my family, as they have on countless other families. It is our hard earned money that has the corporate executives living so luxuriously as my wife and I join millions of Americans in a fight each month to keep our bills paid.

When we started speech therapy with Sam, he only had the ability to say one or two words.

Now Sam has many words.

The greatest joy came from taking Sam yesterday after a hiatus of several months. The excitement that his speech therapist had for the progress Sam has made was really wonderful to see.

It’s been an emotional time.

Halloween is over. Sam still has anxiety but we’re dealing with that as it comes (because lots of folks want to hang onto their decorated front yards for a while longer).

We’re now onto Thanksgiving and looking forward to having a new experience with some dear friends! The whole family is thrilled to try something new for a change!

I also want to thank my friends on Facebook. It is their kindness and support that helps to lift me out of the pit on many occasions. It’s this amazing awesomeness in each and every one of them that combines with the love in my family and makes me feel rich beyond my wildest dreams.

Thanks.

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Halloween has now become my least favorite…

I know that I have friends who are totally into zombies. I know that I even have friends & acquaintances who make their living off of things like haunted houses, scary shit, spooky… you know… this modernized ‘Halloween’.

So friends, just as I support you and do my very best to never be disrespectful, please allow me to vent.

I fucking HATE Halloween.

I just scraped the surface a few weeks ago. With the constant anxiety that Sam has been under (which exists pretty much all of his waking hours) I am just absolutely done with the scary, outlandish, creepy, over-the-top, made of toxic material crap that sits in people’s front yards.

Nevermind the costumes that are about to roll out this weekend. I’m gonna go out on a limb and take a guess at what I am going to see at the bar:

  • Women dressed in something slutty
  • Men dressed like slutty women
  • Zombie men and women
  • Zombie women dressed slutty
  • Zombie men trying to eat slutty zombie women
  • If I see an Angry Birds costume I will have to refrain from punching the bird.

Okay, this seems a little aggressive. It would seem like I am just an angry man who wants to go out and punch stuff, or people. This is not the case. Thankfully, I am a whole lotta words and very little action when it comes to aggressive ranting.

It’s gonna happen, this Halloween thing. I cannot stop it. I cannot make anyone try to resurrect an Autumnal celebration that seems to have now been declared dead and exists only in a bygone era.

So with this rant, and this deep loathing for what this ‘holiday’ has become, I declare it DEAD to me. I know that sounds kind of funny.

So, let me share what these last few weeks have held in store for us.

Sam has a knack for remembering his whereabouts when we go driving. He has now become familiarized with where the most scary homes are. He begins to panic before we even pass the house. He shakes, he cries, he sounds terrified.

In this video clip, I have pulled over the car. Sam was hysterical after seeing a house that had very graphic/gory/horrifying decorations.

A recent class that Jen and I were able to attend together helped put me on track for trying new angles in helping Sam cope and to help redirect him when he is stuck on something, or an emotion, or something that has happened to derail him.

I really had taken a lot of the things they were discussing in this workshop to heart and allowed it to influence the way I did things this past weekend. It seems to be a great thing so far. It’s really hard to maintain calm all the time, but it has to be something that both Jen and I commit to 100% of the time.

In this clip, we’re still on the side of the road and both Zoe and I work to redirect Sam’s fear. “Hockee” is Sam’s way of pronouncing Halloween.

As I drove off, we passed another home (this one is new because they JUST added decorations). This of course sent Sam back into his super anxious/terrified mode. These clips are, for me, even harder to watch when I’m not in the moment. I feel so much empathy for him and can only imagine how awful it must be to be so terrified and to not be able to communicate this with people (let alone your parents).

So, to help Sam cope with the next week, Jen and I are going to get Sam some sleeping masks that we can have in both cars. If he feels like there is something scary he does not want to see, he can cover his eyes.

We’ll see how that goes.

As far as Halloween is concerned, we’re not going to be having candy at our house. Zoe will be able to go out with her friends and experience trick or treating with them, Jen will likely be with her.

Sam & I will have a quiet evening and he will go to sleep somewhere around 7 – 7:30pm

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Fascinated by the garish & gaudy

At some point I found myself having a twisted obsession for castaway figurines, statuary, paintings, needlework, plaques, etc. All of these things can be found on thrift store shelves.

Like people, these items all have a complex tapestry of stories; the person who thought up the creation & made it reality, the store/merchant/catalog that decided that this product was an essential addition to their inventory, and of course… the all important person who fell in love with said trinket and purchased it (either for themselves or as a gift).

Lets also consider the rebirths that these items have through countless gag and white elephant gift exchanges across the country. This is beginning to sound a lot like the inspiration to great movie scripts for films like Toy Story.

I decided to share my obsession today. I’ll add my own thoughts and made-up stories for these items and will be making posts that highlight these great finds regularly.

The Majestic Smoking Owl

 

The first one has to be my most favorite and one that I still kick myself for not buying.

I saw this painting of an owl when I first walked into the thrift store and walked straight to it.

As I got closer I realized that this was no ordinary owl but it was a SMOKING OWL.

So the story I came up with in my head occurs between two people. We’ll call them Alex and Drew. Alex is an aspiring wildlife painter who lives in Sonora, California. He paints this amazing owl as part of a project at the local community college (where he goes to school). Alex thinks he will someday hit the big time and will be able to paint for a living.

Drew is Alex’s friend and room mate. Drew isn’t an aspiring artist but instead, fancies himself as a rapper whose rhymes are born in the mellow landscape that surrounds Sonora; rolling hills dotted with oak trees, mountainous terrain covered in manzanita and cedar trees. Let’s just say that Drew’s greatest accomplishments are found in his delusional self-importance and consumption of cannabis. He thinks of himself as a ‘Player’ but has an uncanny ability to scare women with his persona.

Now that we’ve established this, the story is really simple. This is an act of vandalism. Drew has a party that gets out of hand and in a moment of pot induced mayhem, Drew makes his first contribution to art. He changes this majestic spotted owl into a poker playing, whiskey slingin’ bad ass.

Alex and Drew were not friends after this happened. Alex was so distraught that his creation was defaced that he donated it to a charity.

Band of Angels

The last installment for today is found in this band of angels. When this gem caught my eye I took a closer look.

They all seem innocent enough until you see Ariel – she’s the one member of the band who seems to be the dark angel (you’ll see what I mean in the close-up to follow).

The story that came to mind: Edna, who lived in Tacoma, WA. was excited about the upcoming winter rummage sale at her church. Her husband Arnie just finished making their new mantle over the fireplace. Edna was eager to decorate that mantle for the holidays.

As she strolled through the rummage sale she found these angels. She called Arnie to her side and with much excitement asked him to agree that these little angelic darlings were the perfect thing to adorn the mantle. Arnie grunted once (which meant ‘Yes’).

Edna & Arnie returned home. She wasted no time setting these angels up by the light of the silver tinsel Christmas tree, the sweet sounds of the holiday record by the Seattle Lutheran Church Choir, and the smell of a meatloaf cooking in the stove.

Dark Angel

Sadly, Arnie left a can of varnish next to the oven. The heat caused the can to ignite and they both perished in the resulting inferno.

Amazingly, the angels survived and were then donated to the local Salvation Army.

Edna’s eyesight was poor so she couldn’t ever see the eyeballs on our dark angel.

Sometimes I come up with fictional stories that are horrifying. Some of the stories are boring. Some of them totally vulgar and inappropriate. Please know this before you decide to read more of my posts in the future.

Before I go, I did want to show off one more piece of art. I really want to surprise my wife with this one. This die cast metal work of art is rather large. It is approximately 3 feet wide and about 21″ tall. Nothing says “Honey, I am a virile macho man” like a huge Matador wall hanging. I kid though. My wife would kick my macho ass if I hung this bad boy on the wall.

Mas Macho?

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Just Dance, Sam… But not like a ghost or ghoul!

I’ve been talking a lot lately about the challenges we face with Sam’s crippling fear (and odd obsession) with Halloween.

We’ve gotten to the point where he will panic if he sees pumpkins. PUMPKINS!

Sam will mention Halloween at least one time every 10 – 15 minutes or so. He pronounces Halloween ‘Hah-Kee’ and holds his hands up and fingers forward, moving in a fluttery motion (like a ghost)?

This obsession and fear combination makes it very hard to figure out how to handle his melt downs.

I have successfully found the routes to take at the different stores that have little or no Halloween imagery. On many occasions I opt to not take Sam with me at all (if I can arrange for Jenny or Ryan to watch him). It’s sad because taking him to places like the store help him to gain independence, to participate, and to have a say in some of the items I obtain for us to eat.

Thankfully, the closest large Asian super market has absolutely no Halloween in it whatsoever. So I guess we will be making lots of trips there until November 1st.

We have been trying hard to keep Sam happy and entertain him during this season of what seems to me to be chock full of  images depicting gore, ghastly ghouls, and a general shocking glamorization of death and traumatic disfigurement.

It’s funny that I find myself pretty turned off by this glamorization. I was a huge fan of some fairly classic horror flicks (and probably still am) like the Hellraiser films and a whole host of Clive Barker films (to name a few).

The first thing that offended me was the newborn two headed baby/monster…

Stupid two-headed baby/demon doll

Jenny and I saw that the moment we walked into the thrift store close to our house. Every year the store sells new and used Halloween costumes and supplies.

Here’s the thing folks… Take a long, deep look within and ask yourself: “Does this plastic creation made in China using unregulated toxic materials say to me ‘This is what Halloween is supposed to be to me!’?”

Please don’t take this as me being on a soap box and proclaiming that somehow I am a prude who is going to form some kind of committee to ban this kind of expression.

On the contrary…

I am someone who fiercely believes in freedom of expression, in all forms: music, media, art, religion, food, clothing, body modification, the list could go on and on and on.

My problem is that these things appear in plain sight at places like… The GROCERY store!?!

I have the same issue with the other crap that spews forth on the other overly commercialized holidays as well.

So, for now I am eagerly counting the days until the Halloween bullshit ends and we move closer to the Winter Solstice.

Last weekend Jenny had to work all day Sunday and into the evening. The kids and I stayed at home and did all kinds of fun stuff. One of the favorites was some dance time with Just Dance 2 on the Wii.

Zoe just doesn’t allow me to take video of her so in the interest of keeping the peace I just captured Sam:

Sam is extremely expressive. He has a good sense of rhythm and when given the opportunity, he will actually dance (well). It’s fun to watch Sam approach things like this with such excitement, happiness, and passion.

Some food for thought:

What has happened to the tradition of Halloween?

This holiday has historically been the extension of the celebrations in Autumn that symbolize unity and community (following the long hours of  hard work of harvesting as the days grow ever shorter the closer we get to Winter).

Yes, traditionally costumes have been a part of all hallow’s eve, for what else would one do to ward off evil spirits?

Gatherings & celebrations including bonfires, sweet treats, and games have all been in this long tradition. Where have these gone?

Sweet treats have been hand made (traditionally) and included fruits and baked goods, not aisles and aisles full of individually plastic wrapped high fructose delivery systems to fatten up the ever expanding waistlines of America.

Where are these traditions?  Why are we so disconnected from traditions that foster a feeling of community?

 

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Thank you Cougar, Thanks Saturday. Friday… I will forget you ’cause you were terrible.

I would like to take a moment to reflect on this past weekend.

Friday isn’t even worth mentioning. Except for the fact that it was not only the attack of the jeggings, women wearing the most awful tops (where their bras were almost completely exposed? What fashion trend is that?), and what seemed like an endless procession of men whom apparently have a penchant for being assholes.

I want to take a moment to thank the folks who were extremely mellow (mostly patrons of the bar who appreciate and love the bar) as well as the abnormally large number of cougars that came down last Saturday night. I am not sure if it is because I insist on seeing your IDs, or my general disposition that makes you… fond of me?

To the one cougar whom my co-workers had to witness interacting with me (they are often amused by these interactions) At first, that thing you were doing (where you walked up to random men whose ID’s I was checking and shouting “HEY! This is my husband… Where the HELL have you been?”) was funny but after the 3rd time it wasn’t. The 6th, 7th and 8th times were kind of pathetic but I politely smiled and played along.

Then, when you thought you were being flirtatious, handing me your broken cigarette (as a tip I think?) and proceeding to take my cap off my head (which you are lucky that I wasn’t grumpy because I may have escorted you out of the bar) you stood next to me, leaned in close and whispered in my ear: “What the fuck is up with the hat? Don’t wear the hat. The hat says I’m a pussy. Take it off and own that sexy bald head! You gotta say YEAH bitch, my head is bald and you love it.”

You were funny, albeit a bit annoying at times, but I appreciate your compliments about my biceps, my beard, and when I explained how cold it gets & why I need to wear the hat I was suddenly seen as practical rather than a ‘pussy’. You were much more entertaining than the 22 year old man who was upset that he had to pay (apparently, mister newbie doesn’t go out to see live music enough to understand that bands don’t play for free, exclusively for him… just because he’s handsome) and even more hilarious than the fellow who decided to light entire matchbooks, one at a time, at the wood picnic bench out front and ask me if I was going to get all tough with him…

The weekend is always a mystery. You never know what will happen. What I do know is this:

  • I came home in the wee hours of the morning
  • I gradually make my way to the bedroom
  • I quietly sneak in, I have a little flashlight in hand
  • I hear the trio of deep breaths coming from my family, sometimes there is a three part harmony (occasionally some snores)
  • In that moment I am filled with love and peace
  • I quietly retreat into the bed
  • Sometimes Sam will move a bit, sometimes his hand or arm will wind up being placed on my shoulder, or embracing me…

So, I try to find the humor in all the things that happen during long hours and late nights. I do my best to be a ‘good sport’ and to make everyone feel welcomed, cool, funny, etc.

I can’t always be 100% all of the time.  I am lucky to have an extremely strong connection to calm and patience because I certainly believe it has saved me from getting into bad situations.

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My September 11th

10 years ago, September 11, 2001…

I went to work early in the morning.

My shift began around 7:00am so my commute had to start around 5:45am.

I worked on the 5th floor of an office building in Campbell, CA.

I had a cubicle.

I worked in the software industry and lived in Boulder Creek, CA. in the small loft of a home that was under construction.

I was living an odd life, recently returning to silly-con valley in early 2000 from years in the mountains of Southern Oregon. I had a giant black beard, black plastic frame glasses, shaved head, tattoos… I was far from your ‘typical’ silicon valley software industry worker at that time.

I had some extremely wild adventures, most notably:

  • Flying to various cities to play hard with friends both new & old
  • Was a male escort (I hired myself out to show up on dates, at parties, & events dressed as Fidel Castro or as an Amish fellow)
  • Went on 14 dates in a 2 month span with women who responded to a series of Craigslist Personal Ads I composed (mostly as a sociological experiment) and learned what ‘Bat Shit Crazy Woman’ meant
  • Rode my motorcycle all over the place
  • Was a dedicated mountain biker
  • Traveled frequently to Northern CA. / Southern Oregon often to build straw bale homes (at that time the Strawpenter in me was still very much alive and well)

I had been corresponding with a woman named Jen McGreer for about a week.

She had responded to an ad that I placed on Match.com 3 or 4 months earlier. I had placed an ad to inspire/encourage my dear friend to also place an ad so I wasn’t really looking to meet someone. My profile and ad were way too honest, way too real, very much a reflection of the mountain dweller I had become then. But amazingly enough… Jen McGreer was the first person to write to me.

From the first words she wrote to me, Jen had reached a place in my soul that no one had really been to before. There was a spark that, at the time, was about to ignite an inferno.

So back to the morning at work. It was quiet. I watched the sun rise on my commute in to work. It was oddly beautiful, made more colorful by smoke on the horizon to the East as fires throughout the Sierra Nevada Mountains filled the sky. I drove through the Santa Cruz Mountains, through steep hills covered in majestic redwoods, manzanita, and oak. I was the first person into work that day. I recall thinking that the weather that morning seemed like ‘earthquake weather’. I made the pot of coffee and started my day.

Soon after, more folks rolled into work. It wasn’t long before a co-worker reported the news of an airplane hitting the World Trade Center in New York City.

Our work that day was simply non-existent. We stayed at work to await word from the corporate headquarters as to whether we would continue our work day or go home for the day.

We were all glued to our computers, where streaming video on our monitors showed us everything that everyone else was watching. I was at my computer when I noticed in my Yahoo! Chat window that Jen McGreer was online. I don’t remember if she wrote to me or I to her. I just remember that we were chatting throughout the morning, as each tragedy occurred.

Before our conversation ended, Jen proposed that we meet for sushi in Santa Cruz later that evening. We left the plans totally open and were going to just see if the timing would be right.

I eventually made my drive home and waited to see if she would call.

Time passed, no call. I figured it wasn’t meant to be that night and settled in for an evening of quiet solitude.

Then the phone rang. It was like a bad comedy, me, running around like a fool to find the phone that was ringing, knocking shit over, racing, panting, hollering… I got the call. It was Jen.

We decided to meet in Santa Cruz at a sushi restaurant.

I made the drive to Santa Cruz, nervous, giddy, and excited.

I parked. I walked toward the restaurant and standing with her back to me was a woman with long red curly locks, in an attractive long skirt. I totally don’t remember what happened exactly, how she turned around, if I hugged her, or we hugged each other, regardless… I remember feeling an almost electrical ‘zapping’

The restaurant we planned on going to was closed because of the events of the day. We both knew that Shogun Sushi was just down the road. We decided to try that restaurant instead and it was there that we began what I still refer to this day as the “Summit of honesty”

I apparently talked a lot (nervous), Jen apparently giggled a lot.

What happened next was a multiple hour airing of each others dirty laundry, our greatest moments, our lowest moments, the tragedies, the embarrassments, who we slept with, how many, and it goes on and on. It was absolutely the most exhilarating, most honest, most human, most compassionate and loving date I have EVER had.

We wound up going out for tea after dinner. More conversation, more confessions, more connecting.

Somewhere around 11pm we decided to end the night. I hugged her (though I wanted to kiss her) and we made tentative plans to see each other again as soon as possible.

My drive home was again, like something out of a bad comedy. I was talking to myself, excited, telling myself to not fuck this one up, that I was totally smitten with Jen, even tossing in outbursts like “she’s hot”, “wahoo”, and “yes!” – what a geek.

It was on our second date that we kissed.

Jen and I in Seattle, 2001

I was certain on our second date that I wanted to marry Jen McGreer.

In December of 2001 I proposed to Jen.

We were married in May of 2002.

It has been 10 years since we first met.

We have had some really intense times, Jen and I. Some seriously fucked up stuff has come our way, yes this it true but on the flip side, some seriously amazing and wonderful stuff has come to us.

Jen and I just after getting engaged

I am still very much in love with Jen.

To this day I get butterflies in my belly when I look at her.

My favorite thing ever is dating my wife.

In a world full of stress, intense challenges, where 80% of couples who have a child with Autism get divorced, we are here fighting against all that chaos as a team. We believe with our hearts in fairness, compassion, humor, humility, and love.

So, September 11th means something completely different to Jen and I. It sometimes feels odd to be filled with such joy and love on this day every year and yet it somehow seems fitting that from tragedy and suffering is this love, this partnership that always seems to rise from the ashes like a phoenix.

Happy September 11th

Jen and Rob get married - May 2002

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The Summer That Never Was… Or was it?

You would think that the summer of 2010 would have been a season that I would  like to have had erased from my mind. I spent the whole summer in bed (almost all of it) completely debilitated by vertigo. But along comes the summer of 2011, marching in with its rain, cold and misery.

Summer didn’t arrive until August this year.

This meant that the plans we had made to do warm weather activities were all thrown out. One problem with that is… Our kids were ready to do outside activities. In summer’s past, we would have occasional periods of rain but we could count on dry weather for long periods of time.

Not this year.

My depression issues that stem from a lack of sunshine and a vitamin D deficiency all conspired to make me one of the worst people to be around… ever.

The fact that my wife didn’t leave me still baffles me?

Now it is September and we’ve got the kids back in school. Over the past few weeks we made a last-ditch effort to redeem our summer, or lack thereof, with fun things so that the kids can have them fresh in their minds as they make their way into the new world of 1st and 3rd grades.

We found much healing at the coast and in a creek over the past weeks.

We found a park that is about 45 minutes away to the East of us.

The creek is so lovely and safe for both kids to play around.

The image here is from late afternoon/early evening when the sun had just dipped down behind the mountains and that evening shadow was being cast in the little valley.

We returned on a warmer day and the kids had a delightful time playing.

We started with a  family picnic with Uncle Ryan and then Zoe and Sam both got in the water & played. In fact… we ALL got in and played!

The kids at Eagle Fern Creek Park

Before the creek excursions, we took a trip to the Long Beach Peninsula up in Washington State.

A friend of a friend has a cabin that they rent to a select few folks. It was tucked away in the woods but within a mile of the beach AND Willapa Bay.

We had a lovely time but it was filled with conflict and challenges. It was a harsh reminder that there will not be many vacations for Jen and I where we will feel rejuvenated. We have to be hyper-vigilant with Sam and that is just how it is.

Our last adventure came on Labor Day. We drove Jen to the coast (where she was working on photographing a wedding) and the kids joined me at the beach. We then joined forces with Jen later that night, spent the night in a hotel just north of Seaside, Oregon and then returned to the beach for some family fun.

My big challenge during my solo time with the kids was Sam’s new thing. I liken it to a bit of an anxiety disorder. The path that runs from where we park the car out to the beach is about a 10 minute walk.

This took close to 40 minutes while Zoe and I worked to coax Sam along the path and to the beach. I tried to capture his anxiety in a video but missed it. The closest thing I could get is seen here:

The oddest thing about this anxiety is that Sam LOVES the beach. In fact, I don’t really know of a place where he is as happy as the beach. He understood where we were headed but for some reason he was reluctant.

The following day we all had a pleasant fog filled adventure to the beach before we made the drive back home. Many messages were left in the sand that day:

So now I am sitting here, at the end of the first week back at school, and having accomplished none of the big projects I was supposed to get cracking on. I think it has taken me a few days to just rest and recover from the constant flood of stress, anxiety, fear, anger, and depression that has been filling our house all summer.

I am optimistic that this Fall will give way to new discoveries, better moods, more progress being made on the big projects, and getting healthy before winter’s cold & dark claws steer clear of shredding my soul.

Posted in Autism, Enlightenment, Humility, Observations, Wellness | 1 Comment

And then there’s Death.

Here’s the last 2 posts:

Wednesday, July 22, 2009
Checking out

It’s now Wednesday.

I did not sleep much last night.
My mind is filled with the endless list of things I need to do, things that need securing, plans needing to be made, phone calls to make, and on… and on… and on…

My Father’s pain seems to have once again been met by the powers of serious meds. We have been given the green light to double the quantity of his base level pain meds.

He has been retreating. Food is becoming more of a burden than a desire or a treat. His weight is at an all time low. I am guessing we’re at or below 100lbs, or I am getting stronger and able to lift him easier.

His voice changed before I arrived. It is an almost robotic mechanical sound now.

He coughs, but it isn’t the kind of cough you or I are used to. This is a gentle cough because he simply does not have the energy. It is wet and I imagine his lungs are full of fluid.

I was nervous about leaving tomorrow, but I really have to balance between my family in Portland and my parents now. I have come to the realization that there simply isn’t more that I could do. Everyone will have their own personal feelings about my departing and likely not being present when my Father does go, but then what other people think really does not matter to me in this particular case.

No one can interpret, experience, analyze what I have done. The conversations with my father, the words, emotions, feelings and concerns he shared with me – all of them are treasures that I will hold close to my soul for the rest of my days.

I really need to sleep. I really think I need to look into some pharmaceutical help with sleep once I get back home.

Back to the grind now. Phone calls, arrangements, rescuing the security my mother should feel and has earned.

Thursday, July 23, 2009
Departure

I finally went to sleep around midnight.
I never seem to sleep deeply.
I was in the middle of a dream where I was at the beach with my family when my mother came into the guest room.

“Rob… I think things are not going well. I’m sorry to wake you but I think you should come out now.”

It was 3:55AM.

I came in and my father was fading. At this point, he seems to be exhibiting all of the signs that were written in the book given to us by hospice.

His eyes were slightly open.
He was unresponsive.
His breathing was labored, as if he here a fish out of water. It seemed to occur every 1.5 seconds.
He did not look like he was in pain.

We sat on the couch, holding hands, and watched silently.

4:09AM arrived. His breathing intervals began decreasing. Each breath became more and more gentle and less ‘fish out of water’ like.

And then, at about 4:13AM the breathing stopped.

As I began to get up, he jolted slightly and it startled my mother and I. We could not help but find humor in that split second – like in the movies when a character dramatically dies and sits up for one last moment kind of thing.

He didn’t move.

We watched him until about 4:17AM and did not see him breathing. We tried to feel his pulse, nothing. My mother then grabbed the blood pressure monitor and we tried to get a reading.

There was nothing.

He was gone.

His body was still, the life, the energy, the spirit and soul seemed to have departed from the vessel.

I sat with my mother. It hit her hard. The grief came in waves.

I remained so calm. I am still calm as of 10:48AM today.

I made my way to the kitchen and picked up the phone. I called Hospice and alerted them that it appeared he had passed away.

I called Jen. I told her. I miss her so terribly, again, as I did the previous weeks of being here and away from my heart’s home.

I called my brother. He decided to come immediately.

After he arrived and processed his grief a little, we sat as a family around my father and filled long periods of silence with happy memories.

The hospice nurse arrived and pronounced him dead (officially). She and I worked to remove his T-shirt and replace it with a football jersey (San Jose State Spartans) a gift from one of his fraternity brothers. My parents lived, ate, and breathed football and this was their passion since graduating from San Jose State in the early 60′s.

After my mother retreated to her bedroom, I went for a walk to the coffee shop to load up on caffeine.

After some phone calls to family and friends, my brother called to let me know they were there at the house to remove my father’s body.

I walked back quickly and set my hand on his shoulder. I smiled. I saw him in my mind by the side of a creek with a fishing pole in hand and a roll of toilet paper in the other. There is a long story about that, but it brought an even bigger smile to my face.

I was relieved that his pain and suffering had ended.

Now I am immersed in phone calls, arrangements, restoring the house to its original condition…

I have a timeline and the clock is ticking.

I have to be at the airport in 5 hours. Wish me luck.

Posted in Enlightenment, Humility, Observations, Wellness | Leave a comment